Santiago is doing fabulous and I don't think you would even notice appearance-wise that he ever had anything wrong with him if you didn't know our story. The two newborn pictures here were taken before surgery by my friend Jennifer. He wore a helmet for about 10 weeks after surgery and we go back to Dr. T for follow up appointments every 6 months now. Our next appointment is in April. Dr. T will monitor his progress until he is 7 years old.
This is a condition that runs in my family - both my siblings were born with coronal craniosynostosis. Up until Santiago's birth, we were unsure if this was a dominant trait. Now we know that all our children have a 50% chance of having it as well, but we feel very fortunate that it can be fixed. I know there are a lot of babies out there born with much worse and I pray for them and their families daily.